Resources for Health Insurance Portability and Accountability Act (HIPAA)
Genetic Data Bill Lacks Privacy Protections, Advocate Warns
www.ihealthbeat.org Deborah Peel, founder of Patient Privacy Rights, said the Genetic Information Nondiscrimination Act, approved last week by the Senate Health, Education, Labor and Pensions Committee, would not fully protect people from losing their jobs or health coverage because it allows insurers and employers to hold patients' electronic health information, Healthcare IT News reports.
The bill would prohibit health insurers from adjusting premiums based on genetic testing, restricting enrollment or requiring genetic testing to qualify for insurance. It also would prevent employers from using genetic information to discriminate in hiring, compensation and other personnel processes, and require employers to confidentially maintain any genetic data they possess.
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